When you get injured, you definitely cry out loud for not being able to bear that pain in your body. What if every day you go through the same pain? It sounds terrible.
A guy faces such awful pain every moment in his body and has no other option to get rid of it. Today I’m sharing you a real life story of Jonathan Pitre, who once came in the eyes of the world when his heart-dropping story went viral as “The Butterfly Boy”. This is not the end, Jonathan doesn’t lose his hope, he takes all his pain as strength and is fighting back with it.
Jonathan Pitre was born with Eb (epidermolysis bullosa). This is a rare and painful genetic condition. There is no hope of cure from modern medicine.
Jonathan says: The tough time I faced is when I went for the bath.
You can imagine the condition where the skin layers are broken, the breaks are held together by some kind of glue inside the body. The skin is extremely fragile, where merely eating or drinking can cause blister inside the throat.
According to Jonathan’s mother, every other day Jonathan has to go through the same pain. As a mother, for Tina, it is the biggest challenge to face when her kid is screaming like this and they are both helpless with their pain.
Jonathan says: My strength comes from people around me, as they do believe in me.
Jonathan Pitre, is an avid fan of Ottawa Senators, his dream has always been to play hockey. Due to his condition, Jonathan may never realize this dream. Share this heart touching story to bless him.